good day

I have to say even though I felt like I didn't sleep well last night and clearly remember being awake at 2:30 a.m. thinking about everything, I felt pretty good today.  I didn't nap today and got a few things accomplished!

Sam's EI visit with Sarah went well.  He only napped 1 hour before and we had to wake him so he was getting a little grumpy with her.  But I was able to stay in the other room again and he was ok with that.   I talked with Sarah about a few things to work on with Sam; starting a task (building blocks, puzzles, etc), finishing it and cleaning up.  If a whole puzzle is too much to keep his attention we will start with 3 pieces or only a few of the building blocks or shapes for the sorter until he can complete more without getting frustrated and moving onto the next thing.  

Tonight I inflated the exercise ball that I bought earlier.  Was trying to get him to sit on it but he wouldn't.   I laid him on it and he seemed to like it but not for long.  He enjoyed hitting the ball, pushing it and picking it up to throw.  I think even those are all good pressure movements to work on.

Also had him use the vibrating toothbrush to get the sensory motion but I did put his toothpaste on it too.  He didn't like it at first but warmed up to it and brushed his teeth a little.   He constantly has his fingers in his mouth but I don't think it's due to teething.  So we're trying to give him other things to chew on or get vibrating sensations to stimulate the oral sensories.  (I think that's how to explain it).

Put him to bed at 6:45 tonight and have to get him up at 5:15, leave the house at 5:30 and be at Childrens Hospital in Waltham for 6:30 with his Endoscopy at 7:30.   I'm hoping that doing some of these sensory activities today will possibly calm him tomorrow but not counting on it.   We are going to have a talk with the OR staff as soon as we get called in about trying to keep our area more calm for him; less light, noise and people in his face.  It's bad enough that he has to be there and then to have all these sensory stimulation- it's just too much for him.  Oh shit I forgot to ask my friend Stefanie if we could borrow her portable DVD player.  uggh!   Well I'm sure we'll survive without it but next time definitely!!   Oh now that I remember we tried to use the hospitals laptop last time to watch the Disney channel online and that didn't work but I bet if I bring a Mickey Mouse DVD we can play it on their laptop.  Score!

Now I hope that I can sleep well tonight and not be thinking about tomorrow and anxious in the morning.  Might have to take a little happy pill to help me with that!  haha!