Sam's last scope in March was clear which means he had no eosinophils in his esophagus from the last bunch of foods we had trialed; turkey, rice flour and rice chips and strawberries. Met with his GI doc, allergist and Nutritionist on 3/28. Was probably the shortest appt. and we all agreed to trial corn, beans, 1 more fruit and beef next.
Well it's the beginning of May and we haven't done much. He ate some beans with white rice one night but then vomited, maybe texture of the rice? Then he vomited 4 times during 1 week and we weren't sure what was going on. Maybe seaonsal allergies or a virus? It's always a guessing game. I want to make some corn bread, muffins and pancakes over this next week unless we try hamburger with him. Will see. The last few days he's been very hungry and wanting more formula. He's had 4-8 ozs. more a day and has wanted more food too. Maybe a growth spurt or he needs more food. I know I shouldn't worry but I do worry a little bit when he drinks more formula consistently. I'd rather him eat more food and a variety so I really need to work on that.
School- Sam started full day preschool on March 30th. He loves "stool" as he says! He's also just started saying "more" besides just signing it. It's so cute the way he says it! I have to keep reminding him though every time he signs it to say "more". He's learned so much from school already. He comes home and takes off his jacket and wants to hang it up like they do at school. He sits down and tries to take his shoes off and will put them back on but on the wrong feet. He is using a fork now most of the time. I was working on that with him but he just started doing it at home this week. Every day when we get home from school I go over the paper that is sent home with him to see what he did at school. Obviously he can't tell me what he did so I love that they have this detailed sheet where they circle things or write in what they do. I ask him questions about his day and he will either shake his head and smiles yes or say "noooo" even though I know he did that certain thing. I think he's being silly sometimes with all the "no's" but other times I'm not so sure. Anyways he goes to school M-F from 9-2 and gets all of his therapy services during those times. I'm thinking he may need additional speech and ABA therapy outside of school. We will be meeting with the ABA therapist again on 5/19 to go over how he is doing in school and what else he needs at home or in the community. We've had some tough days this past week. He's been communicating more with words and showing us what he wants but at the same time his "episodes" as I call them have gotten worse again with getting very upset and for a good 45 mins. Again these aren't your regular 3 year old tantrums. Don't even feel like getting into them right now but it's not fun. I'm tired and warn out every night and that's still with him going to school for the 5 hours a day. One day we'll get a nice vacation or a day off but for now I'm happy to still be home and here for him when he needs me!
We've been putting a lot of work into his EOS fundraiser on 5/19. It should be a great turnout and I can't wait!!
Thanks for reading and trying to keep up!
