I can't believe tomorrow, 8/5 marks one year ago that Sam went under for his 1st Endoscopy which gave him the dx of EE!

On 8/16 he will have a baseline scope and biopsies to make sure all is clear before starting new trials. 1 year later and he still can only eat 3-4 foods. We still have such a LONG road ahead of us!   We haven't trialed any foods since March when we took a break to clear him up and switched both GI and Allergy docs.   Not sure what foods we are going to try first but I do know we are going to do it very slowly this time, no rushing and making sure he's done having reactions before starting another trial.   We have learned so much these past few months.

I would like to try cucumber and rice pasta with him again since he loved those so much.  We stopped them because he was still getting sick OFTEN but was scoping clean.  It could have been the reflux pain that was still making him sick.  That is well under control now with him on Nexium 2x a day, and zyrtec.   I think he only had 6-8 "painful episodes" in July compared to 12 the previous months.

ABA update- Sam continues to do very well with his ABA therapist.  It's been almost 4 mths now.  He masters each new "trial" she gives him either that day or within a few days.  We were going to add on 2 sessions in the afternoon but I think it would be too much for him and don't think he needs additional "table work".  I do think he needs a weekly Occupational therapy session and will talk with our coordinator from EI next week (she's on vaca now).   He still gets upset when going to places that he does not know and is only happy when he's in a swing.  I think weekly OT sessions will help this and give us further tools to use with him at home every day.  I have been giving him a quick sensory input before leaving the house for daycare now.  

Daycare- It's been 1 mth and Sam is doing MUCH better at daycare.  He went from having awful dropoffs with crying and vomiting 3 x to this week NO crying when I dopped him off and him getting excited upon arrival to the providers house.  He has gotten upset when his ABA therapist leaves at the end of her session but settles down after 15-20 mins.  I'm so proud of him and hope he continues to thrive and become more comfortable with being there.

Speech- he continues to say the same few words consistently- all done, no, dada, outside, T for tv, Ickey for Mickey, car, key, door.   He signs "more" and "want".  He calls me "Sacey" but is starting to say Mamamama so hopefully that will change soon.  Speech sessions have taken off slowly between sick cancellations we had and doc appts.  This week he has speech 2x and the same next week.  Hoping that will help him take off with what is on the tip of his tongue!!

I think that's it for now.  Thank you for keeping up with us.  This last year has been ROUGH, getting better but still challenging every day.  Having an EE and PDD child is a tough combo!   I'm so glad to have some great supportive Moms out there who know exactly what we are going through!  Love ya all!